Sharing her story regarding excruciating endo pain after a total hysterectomy, Susan was beside herself. After all, she was still in pain, the endo had not been resolved, yet she had followed the advice of her doctor who had coaxed her to undergo a hysterectomy.
Nothing had been resolved! Nothing!
Here she was, still a victim of the endo monster and in fact, the hysterectomy not only failed to resolve the issues, she had now undergone 11 more surgeries since the hysterectomy!
She continued: With every surgery, I get a few months of relief from the pain, but they find endometriosis everywhere! The hysterectomy proved futile against this demon from hell! In fact, it's as if the hysterectomy opened the doors of hell itself! I'm in more pain than I've ever been since this nightmare started!
She continued: I have had the best, I mean the best doctors! I have worked with several OB/GYN's who are specialists in endometriosis. They offer their sympathy, but explain that endo is such a frustrating disease for both patient and doctor. I don't need an explanation, I'm living it!
She continued: To think this all started with a ruptured ovarian cyst when I was 18! I cannot believe the pain and suffering I've endured since then! My body has been taken hostage! The twisting, stabbing and pulling-the endo has caused adhesions to just glue my organs together! My surgeon said my insides are one big mess! I cannot believe the agony this endo has brought upon me!
"Susan," I interrupt gently, "Did you hear what you said?"
She blows her nose and wipes away a tear. "What do you mean? I said I cannot believe the agony this endo has brought upon me!"
"No...not that. What you said before that."
She glances around the room, looking for her sentence. "Oh....that the adhesions have glued my internal organs together and I'm one big mess inside?"
She looks puzzled.
"Bingo," I repeat.
"You don't think I have endo, is that what you're saying?"
"No, that's not what I'm saying. I'm saying, you said he said your insides are glued together. You are suffering the twisting, stabbing, pulling pain of adhesions, not endo. Surgery is the number one cause of adhesions and every surgery you have results in more and more adhesions. I don't doubt you have endo, but you are stating your doctor said your insides are GLUED together. Imagine if I took your arm, pulled out my super glue and placed just enough glue on your arm to adhere it to your torso. Do you think when you tried to pull your arm away you would feel pain?"
"I can't even imagine the pain I would feel."
"Then imagine how your internal organs must feel if they are glued together! The internal organs are designed to glide inside the body with each movement your body makes. If your insides are glued together, every movement hurts. Not just pain, but often agony. Many who suffer from adhesions also suffer nausea, vomiting, bowel obstructions, difficulty breathing, back pain, migraines, infertility....organs are compromised and fighting to function properly. Your adhesions likely began from that ruptured ovarian cyst."
"So if I am suffering from adhesions, why hasn't my doctor explained that?"
"For that, I do not have an answer."
Because endometriosis is an inflammatory condition, adhesions can form. Adhesions This subsequent factor resulting from an inflammatory condition, is a highly ignored medical illness. Women who suffer from endometriosis should realize they may also suffer from adhesions-a separate illness in and of itself. While the doctor may fail to thoroughly discuss adhesions and place all focus on endometriosis, the sufferer must become her own best doctor and sort through the issues going on within her body. Post-op reports are often the best place to start. Read those reports and look for adhesions or scar tissue within the report. For more information, check here: Endo and Adhesions